To Bella love Mummy

Dear Bella,

As I sit here watching you play, on the day your new sibling is due to arrive, my eyes fill with tears. The last couple of weeks I’ve felt such mixed emotions. Obviously huge excitement to welcome your little brother or sister, but also a deep sadness that our days as a twosome are coming to an end.

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We need to talk about Bella

I’ve not blogged for a while, early pregnancy really took the wind out of my sails and the couple of hours between Bella’s bedtime and my own which I would normally use to work or write got swallowed up by my desire to lie down and try not to be sick!

Then the early sickness left me but a different kind of nausea took over. You see I’ve found it’s very different being pregnant when you already have a child with DS. Continue reading

The True Cost of a Cheap Laugh …

Totally agree! Jokes that are racist aren’t acceptable so why are jokes about disabled people? They’re not. Well said Kerry Fender 👏👏👏

The Odd Sock Diary (and Other Stories)

In the early 1980s a horribly racist ‘joke’ did the rounds at my school. One lad in my year, whose family originally came from Pakistan, always laughed along with this joke. We all thought he was a jolly good sport; we weren’t mature, or enlightened, enough to understand why he felt the need to do this. Such a joke would, quite rightly, be unacceptable today, and were anyone to make such a remark in front of his children they would, quite rightly, challenge it.

What has this to do with Down’s Syndrome?

A couple of evenings ago, a fellow DS advocate made a post on her Facebook page after watching the Jonathan Ross show. She wondered how actor Kit Harington, who is also a DS advocate, felt about sitting next to comedian Frankie Boyle, who in the past has made some rather vile and offensive ‘jokes’, mocking children with Down’s…

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Why the Daily Fail proves we need Brelfies more than ever!

So a bitter old cow at the Daily Fail wrote a scathing attack on celebrity mums for posting pictures of themselves feeding their children. She was so full of misinformation about breastfeeding, it was laughable. The bitter old cow, or BOC as I’ll lovingly refer to her from now on, did breastfeed her children but it was over 20 years ago. Come on now love, science and our knowledge has moved on a little since then but she seems not to have kept up! Continue reading

Breastfeeding a unbreastfeedable baby

Since my blog post about mine and Bella’s breastfeeding story a few people have asked whether I have any tips… I do! I have loved, and at 11 months ebf, continue to love breastfeeding so much that I wish all women could experience it. I literally can’t imagine not having had this part of motherhood and I feel so sad for the mother’s who desperately want to breastfeed but are unable to do so. The more help, information, and support that is available for new mum’s, then the better their chance of success – so this is my small attempt to help!

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Down right wrong – a mother’s view on NIPT Testing

Where do I start. Okay let’s be clear, anything that reduces the risk of miscarriage in pregnancy is welcome. On the face of it the introduction of the non invasive prenatal test is a good thing. In a previous blog I shared our experience of prenatal testing and we decided not to have an amniocentisis because of the tiny risk involved. We were offered the NIPT but only if we handed over £600! If we had so much money that we wouldn’t miss it then we may have had the test. Not so that we could head straight for an abortion if the result was positive but so that we could read, educate ourselves, and talk to parents who have children with DS. If that is the aim of the test then it is marvellous, but lets be honest, with a termination rate currently at 90% for a DS diagnosis then I highly doubt that this is the intention. Especially when you consider some of the seriously negative language used in the media today by shoddy journalists, but more worryingly direct quotes from those within the medical profession. Words such as, suffer, disease, debilitating, severely disabled… these are words that I don’t recognise when I look at my beautiful baby Bella. Continue reading

You can’t breastfeed a baby with Down Syndrome right? Wrong!!!

As I’ve already mentioned in previous blogs, we didn’t have an amnio, so we weren’t 100% sure that Bella would have Down Syndrome before she was born. With this in mind I didn’t do any research into what life would be like with a baby who has DS or what some of the potential issues might be. I like to tell myself that I didn’t want to put the cart before the horse, but in reality I have a long history of not revising, my GCSE results are a testament to that!

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